Media platform for people to understand genetic disorders and conditions.
“Idensei Shikkan Plus” is a media dedicated to providing information on genetic disorders for patients and their families. In Japanese, genetic disorders are called 'Idensei Shikkan'（遺伝性疾患）.
We provide easy-to-understand illustrations of disorder mechanisms and explanations for specialized and complex terms. This enables readers, including patients, to comprehend complex information more easily.
In anticipation of the era of genomic medicine, we encourage readers to acquire accurate knowledge about genetic disorders and explore various treatment options. We also provide opportunities to connect with others who have the same disease or are in similar situations.
“Idensei Shikkan Plus” is operated by QLife, a member of the M3 Group, which provides services to consumers, medical professionals, and pharmaceutical and medical device manufacturers. QLife is a company that practices medical marketing, utilizing its expertise to address various issues in the healthcare industry.
Editorial Policy
We, the editorial staff, check all articles before online to ensure the accuracy of quotations and descriptions. Below are the main article categories and their specific content and editorial policies.
Disease Description
For each genetic disorder, we provide a disease description. The articles are edited for easy comprehension and include illustrations, based on information from reputable public websites and official sources in Japan and other countries. The main sources of information are Japan Intractable Diseases Information Center, Information Center for Specific Pediatric Chronic Diseases（Japan）, MedlinePlus operated by the U.S. National Library of Medicine, Genetic and Rare Diseases Information Center operated by the U.S. National Center for Advanced Translational Science, and others.
Interviews with Specialists
This website features interviews with medical specialists, key opinion leaders, genetic counselors, and other experts. Interview themes include drug development, the latest treatments, research advancements, and other relevant topics. Also, interviews include questions and answers from patients and their families.
News：Genetic Disorders and Related Events
We provide up-to-date information on research, new drug developments, and new therapies related to genetic disorders. This information is primarily sourced from press releases issued by universities, medical institutions, and pharmaceutical companies. We edit this information to make it easy to read and understand for our readers. Additionally, the site features announcements from patient support groups and other relevant information, providing a comprehensive resource for our visitors.
Clinical Trial Information：National and International
We provide summarized information on ongoing clinical trials and studies that are currently recruiting participants. Japanese trial information is primarily collected from two sources: UMIN-CTR, operated by the University Hospital Medical Information Network（UMIN）Center, and the Japan Registry of Clinical Trials（JRCT）, operated by the National Institute of Public Health. International trial information is collected from ClinicalTrials.gov, a registry operated by the National Library of Medicine in the United States.
Interviews with Patients, Families, and Patient Support Groups
We feature articles that interview individuals with genetic disorders and their families about their experiences, challenges, and insights related to their conditions. We also interview representatives from patient support groups for genetic disorders, covering their activities, motivations, and future initiatives.
Daily Living Tips
We provide interview-based articles providing helpful information for various common situations faced by people with genetic disorders, such as "When hands have limited function" or "When using a wheelchair.
Understanding Genetic Disorders
We offer explanatory articles on basic knowledge about genetic disorders, genes, inheritance patterns, and genetic testing. The primary source of information is MedlinePlus, and Genetic and Rare Diseases Information Center.
